Bentley Haskett, born on August 24, 2022, and diagnosed with Spina Bifida myelomeningocele, the most severe form of Spina Bifida. He is the son of MaKayla Smith and Jaylon Haskett of Natchitoches, Louisiana.

This condition occurs when a baby ’s spine does not close completely, leaving part of the spinal cord exposed. It can cause nerve damage that affects walking, mobility, bladder and bowel control. Many children, including Bentley, also develop hydrocephalus, a buildup of fluid on the brain that often requires surgery. At just two hours old, Bentley underwent his first surgery to close the opening on his spine. Within his first week of life, he required a second surgery to place a ventriculoperitoneal (VP) shunt to treat his hydrocephalus. Despite these challenges, Bentley recovered well and has continued to face each obstacle with remarkable strength.

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Since then, Bentley has worked with a large team of specialists, including neurosurgeons, neurologists, urologists, orthopedists, and physical therapists. He began physical therapy at just two months old and continues twice weekly to this day. With determination and resilience, Bentley reached milestones many thought would be impossible. He crawled at 18 months, began walking with a walker at 2 years and 2 months old, and has since undergone an additional surgery to lengthen his tibial ligaments affected by nerve damage. Bentley’s journey includes numerous

specialty appointments, ongoing therapies, and at times specialized equipment or intensive treatments that insurance does not always cover. Support for Bentley helps his family with travel expenses to his medical appointments and allows them to build a savings account for his future needs both today and in the years ahead.

Bentley’s determination, resilience, and bright spirit inspire everyone who meets him. His story is a powerful reminder of courage in the face of adversity, and a testimony to the impact of community support.